Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is a non-profit organization that has pursued a cure for cystic fibrosis since its founding in 1955. It operates through a venture philanthropy model, funding research, drug development, and patient support programmes. The organisation maintains a patient registry that tracks health outcomes across accredited care centres nationwide.

The Foundation's approach has yielded significant results in the pharmaceutical landscape: every cystic fibrosis drug available today exists because of Foundation support. This track record reflects a decades-long commitment to translating scientific research into therapies for a genetic disease that affects the lungs, digestive system, and other organs.